Background and aims. In pediatrics receiving a diagnosis of a chronic condition is a matter that involves caregivers at first. Beyond the basic issues of caring for the physical body of the ill child, caregivers’ manners of facing and making sense of the disease orient and co-construct their children’s sensemaking processes of the disease itself. The aim of this article is to explore the experience of a rare chronic illness, Hereditary Angioedema (HAE), in pediatrics, from the caregivers’ perspective. Hereditary Angioedema (...) is characterized by subcutaneous swellings that can involve the mucosal tissues of external as well as internal parts of the body, manifesting in a highly variable and unpredictable way in terms of localization, severity, and frequency. Materials and methods. Within a qualitatively-driven research design, we conducted a qualitative narrative semiotic analysis of n.28 mothers’ narratives on their children’s disease experience. Narratives were collected by an ad hoc interview on three domains of the disease experience: A. interpretation of the disease variability; B. dialogical processes; C. management of the disease. Subsequently, we executed a TwoStep cluster analysis for categorical data to detect cross-sectional profiles of the maternal sensemaking processes of the disease. Results. The coding grid was built analyzing the characteristic of the narrative links that orient the connection between the elements of the experience within each domain: A. the connection among events, for the domain of the interpretation of the disease variability; B. the connection between self and other, for the domain of the dialogue; C. the connection among sensemaking and actions, for the domain of the management of the disease. Results from cluster analysis show three narrative profiles: 1. adempitive; 2. reactive; 3. dynamic. Discussion. Profiles will be discussed in the light of the general conceptual framework of the Sense of Grip on the Disease (SoGoD) highlighting the importance of those sensemaking processes which, instead of relying on a coherent and close interpretation of the disease, are characterized by a degree of tolerance for the uncertainty and the unknowingly. (shrink)

Riassunto: Presentiamo una prospettiva semiotica e dinamica per indagare e discutere dal punto di vista psicologico i fenomeni della regolazione affettiva attraverso la mediazione e l’articolazione dei segni. Al fine di evitare uno sguardo semplicistico, lineare e riduttivo, i fenomeni affettivi sono presentati come campi quasi strutturati, i quali vengono a differenziarsi attraverso mediatori semiotici. La loro funzione è quella di orientare le persone attraverso l’anticipazione dell’immediato futuro. La regolazione semiotica conduce alla costruzione di gerarchie – temporanee – ovvero strutture (...) di segni che incanalano le esperienze. Dalla costituzione di segni operatori di meta-livello segue sia la veloce espansione della costruzione di segni sia l’arresto e la demolizione della temporanea gerarchia regolativa di segni. Tali segni permettono tanto l’espansione flessibile quanto la limitazione della profondità e della ridondanza dei processi di auto-regolazione delle esperienze soggettive e delle azioni nei diversi contesti. Parole chiave: Mediazione semiotica; Segni; Gerarchie; Affetti; Regolazione affettiva; Campi affettivi The Dynamic Regulation of Affective Processes through Semiotic Mediation: We introduce a semiotic and dynamic perspective to investigate and discuss – from a psychological point of view – the process of affective regulation through the mediation and articulation of signs. In order to avoid a simplistic, linear and reductive appraisal, affective phenomena are presented as quasi-structured fields, which differentiate themselves through semiotic mediators. Their function is to orient people in anticipation of the immediate future. Semiotic regulation leads to the construction of temporary hierarchies, namely structures of signs that guide experiences. From the constitution of meta-level operator signs ensues both the rapid expansion of the construction of signs and the arrest and the demolition of the temporary regulatory hierarchy of signs. These signs allow for flexible expansion but also limit the “depth” and redundancy of self-regulation processes in subjective experiences and actions in different contexts. Keywords: Semiotic Mediation; Signs; Hyerarchies; Affects; Affect Regulation; Affective Fields. (shrink)